Asperger
Syndrome Australian Information Centre![]()
HIGH SCHOOL
HELPING YOUR SON OR DAUGHTER TO MANAGE AT HIGH SCHOOL - AND MAKING IT AS ENJOYABLE AND SUCCESSFUL AS POSSIBLE.
By
Heather Lord
(originally published in the
Aspergers Syndrome Support Network (Qld) newsletter in 2001)
Adolescence
and the years at secondary school can be difficult for all young people, but for
our sons and daughters with Asperger's Syndrome (ASD), there are often many
extra challenges and anxieties. Whilst
every young student with ASD has different abilities and levels of coping from
others, we know that there are many common issues for many of them and their
families.
Our
son completed Grade 12 in 2000. By sharing some of our experiences and
strategies for working with him and the staff at his secondary school and
knowledge of others' experiences, perhaps it will be helpful for other families.
Teachers may also find these useful.
K
is our youngest child, the second of 2 boys.
Knowing early that K would need a small, nurturing environment, we
enrolled both boys at a small, coeducational, independent, church affiliated
high school with a strong focus on acceptance of the individual, cooperation and
balance in life and learning. Whilst
K had lived with many difficulties and had significant interventions all his
life we did not gain his diagnosis of Asperger's Syndrome until Grade 9.
We were not to know the levels of support that he would need to cope at
high school and in meeting the requirements of the state's academic education
system.
The
success of this turned out to be the school's cooperation in working with us,
and the staff's readiness to meet K's needs when we highlighted what was
required. Small schools do not necessarily have the resources for large special
support units and additional teacher aide time. We developed a close
relationship with the special needs support teacher(s), and worked with her in
representing K's needs to his subject teachers and the school administration
team. We received great understanding from the school Principal and
administration, and from many staff members, and worked to create understanding
with a number of others.
K
is a quiet, intelligent young man with good verbal skills and whose world
revolves around computers and computer programming. Other interests are in
science and the maths that relates to computer programming. We are fortunate
that K has not displayed significant behaviour problems at school or elsewhere.
However, this tends to hide how hard it has been for him to cope. He has
significant processing and organisational difficulties, is greatly unsettled by
change of any sort and can suffer from considerable anxiety. These combine to
immobilise him regarding doing new things, going out, initiating anything,
managing homework and study on his own and doing assignment work. He also has a
great need for personal space and time alone.
K
made some friends around his interests in science and computer games in Grade 8,
and overall this initial friendship group remained through school. However, he
did not always understand the repartee, jokes and cynicism of his teenage
friends and was often the object of the group's humour. In Grade 10 and 11
changes in the structure of the group, as friends sought alternate associations
and developed different interests, were also very distressing for him. His
difficulty in initiating social contact also made him dependent on one or two
special friends and on the computer interest groups we could organise on
weekends. Whilst not needing lots of social contact, the confusion and hurt
about social dynamics at school caused significant trauma and anxiety especially
in Grades 10 and 11.
K
finds interactions with lots of people very draining and finds change very
difficult. Whilst he would appear to cope at school, if absent mindedly, he
would come home totally exhausted and needing to retreat from all interactions
and changes in the day, to the isolation of his computer interests.
To
return to the demands of homework and assignments in the evenings and on
weekends was often traumatic for K and for us all. There was a need for lots of parent support to help him
start, deal with anxiety and blockages, keep on track and to manage an
appropriate workload. Without help and encouragement, he would not have managed
much homework and few assignments would have got done. Being an intelligent
person increased his expectations of achieving well, but this heightened his
anxiety and made his procrastination and avoidance worse. The degree of his
processing difficulties also made production slow and in Senior years homework
and assignments dominated the evenings and weekends.
It
was difficult for some of the staff at school to understand the degree of K's
problems because he could work within the structure of a classroom setting, with
set tasks during the day when he was not too tired, he appeared to have a
friendship group and could achieve well. It took considerable and constant
communication with the school to ensure that the real picture was understood,
and that appropriate special considerations were made around his academic
assessment and expectations of him in school life.
Like
all teenagers K matured greatly at age 16-17 or so, even though his general
level of coping, independence and self-organisation lagged behind. In Grade 12,
with support and enormous courage, he went to the School Formal and on some of
the hiking expedition, managed the demands of the assessment process (with
special considerations), was invited and went to some teenage parties, and
survived the close crowds at the end of school Graduation dinner and
celebrations – and enjoyed most of them!
He also met his goals academically, so as to go on with his desired
computer studies.
It
was a very demanding time, as parents, but worth all the effort. Our ASD
children are often not well understood by all staff or by their peers, and the
assessment system is demanding for any high school student, let alone these
young people. As parents, we can help enormously by representing our children's
needs clearly to the school, forming partnerships with staff, gaining the
support of medical and other specialists, insisting on changes when needed—and
never giving up!!!
I
found it useful to keep in mind that anything that was frustrating and difficult
for us was so much more difficult for our son!
Most
of these are issues identified by K as things that teachers should be told, as
well as issues based on our experience and our knowledge of his and other ASD
children's issues. We found that as K got older, he could tell us so much more
of what was difficult or different for him, and this made it easier to
understand him and to represent his needs to others.
The
high school day has many changes – different classrooms and teachers for each
subject, different ways each teacher does things and expects students to do
things, a different timetable each day etc. For students with ASD this can be
unsettling (initially at least) and exhausting. It can take a lot of extra
concentration and emotion just to cope with the day, let alone doing work in
class and remembering everything.
Changes
in teachers and having relief teachers, (which regularly happens in high schools
when teachers are at meetings, on excursions with their other classes or are
sick) can be extremely unsettling for these students - enough to upset the whole
day.
The
multiple interactions of the day, with teachers, friends, other students, admin
staff, bus drivers etc, and the concentration involved in responding
appropriately, can be totally exhausting. After getting home the student may
need lots of personal space. This can also be a time when the tensions of the
day are released – in the security of his/her home, where no-one will judge it
to be weird, childish or inappropriate. Some
ASD students learn to hold themselves together at school (most of the time), to
avoid the embarrassment of being distressed, or angry etc in front of their
peers, and the family can help by catching the emotional overflow at home.
Computer games can also be a very helpful way of releasing pent up anger (wipe
out the enemy!), gaining a feeling of success if lots of things have gone wrong
that day, while being left alone. Pets can also give wonderful comfort.
Homework
can be incredibly hard to face in the evenings and on weekends.
ASD students are often genuinely exhausted, and have already tried so
hard during the day at school that it is almost too much to bear.
This
is one of the most important things for parents to help balance with the school.
What is necessary to do to help the student keep up with the work and meet
assessment requirements, but balanced with his/ her levels of enjoyment of
learning, coping and stress? Often what the ASD student can really manage is
different to what the teacher plans for the class. In addition, many ASD
students grasp concepts quickly, and may also have photographic memories. If
this is the case they may not need to learn by repetitive homework. Revision for
tests can be a highly irritating process.
Social
aspects of school can be hard for ASD students, and this can be accentuated in
adolescence. They do not always understand the innuendo, and humour of their
peers, e.g. 'kidding around' behaviour, cynical or negative jokes, comments made
light heartedly at other's expense. They may feel embarrassed, naïve, laughed
at, traumatised, and harassed, for their lack of understanding or inappropriate
responses. This may lead to anxiety and /or depression.
With
so many changes, things to remember and to do, the student may be quite slow in
learning the names of people around him/her. Even in Senior years it may take a
long while to know all the teachers' names and those of everyone in each class.
This can be embarrassing, especially if asked to do a task for the class. It
gives ammunition for teasing by those who do not understand. ASD students also
may need time alone at breaks in order to cope with the next block of classes.
This can also be misunderstood by peers, who are usually quite social, and may
also lead to taunts and teasing.
If
friends make moves to spend time with other groups, or as friends develop
interests in having girlfriends or boyfriends, the ASD student may feel lost,
deserted and isolated. The normal rapid changes in adolescent relationships and
in levels of maturity in his/her peers and friends may not be the same as
his/hers, and this can be difficult. The ASD student may not know what to do or
say as things have changed. His/her dependence on a narrow interest area may
leave him/her out of step with others. However
keeping up social contact around common interests with friends, or finding a
person/group with the ASD student's interest seems the best way of getting
through this stage.
Criticism.
ASD
students may find criticism (even constructive and mild comments) very negative,
personal, pointed and hurtful. It is hard for some students to tell the
difference between helpful comments and the negative. This can effect the way
the student feels supported or understood by teachers and peers, often only
hearing negative messages when they are not intended as such. This reduces
self-esteem and compounds feelings of not managing, or being good at anything.
Getting stuck with one
message.
Depending
on the way in which the student understands the social rules in his/her world
and his /her degree of rigidity with these, a negative experience such as a
perceived criticism or getting into trouble, may govern his/her interactions
with that teacher or peer group for a long time. The student may believe that
the person(s) continues with that attitude or issue way after it is all over.
This can cause worry or inappropriate responses to people, e.g. being too scared
to ask a teacher a question or for help or to approach a group of peers.
Understanding spoken
communication literally.
Most
ASD students take spoken communication quite literally and personally, and this
may be so even if the teacher is talking to a group. If the group is being
reprimanded the ASD student might feel greatly accused for something that he/she
was not involved in. If it is a pep talk about trying harder to do one's best,
it may be taken as extra pressure personally to do better – which is stressful
when one is trying one's hardest already!
Friends
and teachers can be helped to be more aware of the effects of their language,
and encouraged to think how their words and sentences would be understood when
taken literally. In secure company, and only if the ASD student can cope, this
can provide some mutual humour as well as increased understanding of a person
with very different thought processes.
Understanding the real
meaning of an ASD student's logical statements, and his/her social
inappropriateness.
ASD
students often state things that are logical and obvious – but sometimes it is
not socially appropriate to do this, especially to a teacher. These students can
get into trouble when they are not meaning to be rude or difficult. This is
doubly upsetting when they are really commenting on something that is stressful
for them, e.g. "Well how do you think anyone can work with all that
building noise outside!" and it is all further misunderstood.
Other
students can also misunderstand this apparent bluntness. They do not know that
the ASD student does not appreciate the subtleties of language nor know how to
read the communication style and social dynamics of the group. Some ASD students
do have some insight into these matters, but have to learn or be taught the
appropriate ways both to interpret communication and to respond.
Noise
affects everyone differently, but often greatly disturbs those with ASD.
Sharp, loud, unexpected noises, or the general noise of a classroom, can
cause irritability, frustrated behaviour and outbursts, or the student may shut
everything out by focussing on one thing only. The latter means that the student
misses a lot of what is said by the teacher, or misses the communication between
peers and the consequent group learning around him/her.
ASD
students gain self esteem from their achievements and knowledge base in their
area(s)of special interest. As teenagers they are often aware that they are not
really competent with the social side of school, and need to have their
intellectual and interest areas extended and supported. "If you take away,
discourage, or scorn the interest or talent, there is nothing left"
Teachers can be encouraged to use this interest as a vehicle for learning more
about the student, for the student's own learning and expression in the
classroom and in the life of the school.
If
the ASD student manages tasks in a linear manner, one thing at a time, and if
he/she tries to focus fully on the task at hand (these students often also have
attention deficits) he/she is likely to be slower than others overall, and also
will miss things. For example, if concentrating on copying down the set
homework, other instructions from the teacher may be missed – for instance,
often at the end of class students have to collect handouts about the homework
or an assignment.
Secondary
school, as with regular adult life, runs faster and in a more demanding way,
than primary school. Most people can hear a number of requests or know they need
to do a series of things without concern. However this can be very stressful for
those with ASD if they can really only cope with thinking of and doing one thing
at a time.
The
structure of the high school day is based on multiples – in Grades 8,9,and 10
there may be up to10 different subjects across the week, with 5-8 classes each
day, and in Grades 11 and 12 most students take 5 or 6 subjects. This is just
the background to the multiple requirements for each.
An
advantage of the separate subjects at high school though, is that it
compartmentalizes things and ASD students may enjoy this structure, as well as
the nature of certain subjects, e.g. science or manual arts.
These
can be considerable with some ASD students and without help a student can really
flounder at high school. Teachers will nurse all students through initially in
Grade 8, making sure they have things, understand what to do and can proceed.
However there is an expectation that teenagers can increasingly manage to be
told what to do and get on with it themselves, in high school, which may not be
the case with ASD students.
This
is another area where parents need to work constantly with the school, keeping
up with due dates, knowing if tasks have been set and given out, and what is
expected. It is impossible for a student to start an assignment without the task
sheet, and he/she may not even know it was to be collected! Similarly, he/she
may not remember that there is to be an excursion and may turn up unprepared,
without the permission slip and in the wrong clothes etc. This is embarrassing,
especially in senior years, quite apart from the lost learning time. (A great
deal of class work and assignment work in all subjects is now based on real life
experiences, and it is desirable that the student be involved in these to know
how to follow on with the work and to have the relevance in the learning.)
High
school teachers naturally work to enhance the maturity and independence of
students, and soon expect a lot of self-organisation. Most students gradually
manage this, even though some are forgetful and disorganised. However, most
teachers will not understand the degree of this problem for an ASD student and
the other associated difficulties, unless they are clearly told and instructed
how to help.
For
example, it may not be reasonable to expect the Grade 9 ASD student to go to the
staff room at lunchtime to get the forgotten instruction sheet, whilst it is for
most students. The teacher needs to be aware of the difficulty that the student
will have in changing his/her lunchtime routine, remembering the extra thing to
do and the anxiety of having to interrupt teachers in the staff room. Similarly
the teacher needs to know that it is also not helpful to ask the student to come
back to the staff room after class, as that will make the student late for the
next class, and why that is a problem. Better that the teacher simply remembers
to take a sheet to the next class and quietly gives it to the student! However,
by Grade 11 or12, with assistance, the student quite possibly could do this even
if reminders about it are needed.
For
some ASD students these activities may be great and much more fun than regular
school times. However, for others, they might be the most traumatic experiences
in life.
High
schools often incorporate these activities into their subjects as 'hands on'
learning experiences, which are great for most students. For example, a few days
away learning about rural life, art camps studying natural form, and biology
camps studying marine life. Day excursions are also common. There are also
personal development programmes involving outdoor activities such as hikes,
canoeing, abseilling, swimming, rope courses and camps etc.
For
some ASD students, the change of routine and the unknown destination of an
excursion may cause anxiety, and lots of preparation may be needed to help
him/her go. Similarly leaving home to go away to camp to a strange place with
unfamiliar others, can be a horrendous experience for some ASD students.
There
is a need to help staff understand these difficulties and to plan ahead for the
student's inclusion in some or all of the activity, or for the staff to
understand the reasons why the student cannot participate.
Ultimately, parents and specialists will seek to protect the ASD
student's emotional wellbeing and a firm stand may need to be made if these
sorts of activities cause too much vulnerability or trauma.
NEED
FOR A 'SAFE PLACE' AND 'UNDERSTANDING PERSON/S' AT SCHOOL.
There
can be times when everything becomes too much for an ASD student, causing
his/her emotions to wind up and overflow. This may be caused by sensory
overload, anxiety, frustration, anger, embarrassment, or confusion, and can be
displayed by crying, aggressive language or behaviour, rage, fleeing from the
scene or other anxiety responses. It can happen for obvious reasons or be
'out of the blue'. Teasing and bullying, or misunderstanding the 'rough and
tough' of the interactions of adolescent peers are obvious triggers. Being
placed in crowded or strange environments, or having things go wrong in class
are some of many other reasons.
It
is important that these students have a place of retreat in the school where
there is privacy and also people who will understand, without the need for
immediate explanation. Outbursts and distress, and the consequent embarrassment
(and ridicule), can be avoided if the student can leave the scene in time, and
have the right environment and/or support to calm down. Sometimes these students
can be aware that things are going wrong but do not know what it is. They need a
trusted person to go to who will recognise immediately that there is a 'crisis',
give him/her time to settle in the most appropriate way for that student, and
then help work out the problem or explain the reasons for the confusion or
anxiety.
The
special needs support area is an obvious place, but the right place and people
should be worked out with the student and support staff, and parents if needed.
These students can usually be very clear about where and with whom they
feel 'safe'.
A
basic principle of inclusion of people with special needs is the establishment
of 'an even playing field'. It is therefore reasonable to expect the school to
make appropriate allowances for the ASD student with assessment work, so that
he/she has an equal chance of showing his/her understanding of the subject.
Schools
however, also have responsibilities to offer and demonstrate equity to all
students. It is therefore reasonable for them to require specialist verification
or recommendation of the ASD student's need for special consideration, e.g. from
a psychologist, psychiatrist, pediatrician, GP, recommendations from the results
of psychometric testing and so on. The school may require updating of this
verification (e.g. a letter from the specialist) each year; certainly in the
Senior years and for the Queensland Core Skills Test in Grade 12. Verification
of the diagnosis 'Asperger's Syndrome' (or another condition, or set of
difficulties) might be all that is needed.
Once
this is done, the particular requirements can be established, such as extensions
to deadlines, sitting in a separate, quiet area for tests, extra time for tests,
use of a computer instead of writing longhand in tests, doing less questions on
a test, modifying the assignment task etc. This can be quite a continuous task
for parents throughout the high school years, depending on the student's ability
or willingness to work this out with Special Learning Support staff and
teachers.
Even
if at a different rate from his/her peers, and with a range of different
strengths and weaknesses, the ASD student matures and seeks and needs
independence. For parents who understand their son or daughter so well, keeping
the balance between advocating for and assisting the student, and letting the
student learn by mistakes, consequences and the normal "knocks' in life,
can be hard.
Parents
can be accused of being over-protective, or having too much personal involvement
in their son's or daughter's schooling and lives. Other people may commend them
for being proactive. A constant attempt at a balanced approach, is the way to
go!
The
ASD teenager needs independence from parents and certainly will not want them
constantly visible at school. His/her ideas and views are important in guiding
how and when the parent responds as the student has to be comfortable in his/her
own school environment.
Nevertheless,
regular, reasonable contact with the school by parents does help enhance the
staff's understanding of the student, since so much that is different is not
always obvious with Asperger's Syndrome. Appointments at the school when
students are in class, phone calls, emails and letters are good ways to
communicate whilst respecting the student's need for privacy at school and to
avoid causing him/her embarrassment.
This
is vital if your son's or daughter's particular needs are to be understood at
high school.
Do
this considerately (your child is not the only one in the school with special
needs!), but constantly.
Be
a help to staff in working with your child, rather than demanding things, or
giving information and expecting them to know how to use it. Give lots of
relevant information and make gentle suggestions if necessary.
Ask how you can assist.
Remember
that many high school teachers do not have any training in special needs and may
not have heard of Asperger's Syndrome. They are also very busy meeting the
varied needs of all students in their classes. Let them know that you understand
this.
If
you have time, become involved in some way in the life of the school. (E.g. with
tuckshop, uniforms, a P&F committee, library volunteer etc). This
participation and interest is known to be beneficial for any student, and you
will be involved as any parent is, rather than just as the parent of a student
with special needs. It is also a way to feel that you belong, and helps you know
more about the school
You
will have chosen the school with your child's needs in mind and will probably
have some initial knowledge about how it runs.
When
your child starts there, get to know the school personalities and routines
quickly. Who are the key figures in
your child's school life? e.g. home class teacher, special learning support
staff, subject teachers, the Principal, the library staff, the person who
oversees medication, the person you go to when you are sick or late etc.
If
your child finds it hard to remember the names, phone and find out who everyone
is.
Get
to know the key learning support staff, or whoever will be the best link to all
of your child's teachers.
Provide
these key support staff, from the start, with detailed information about your
child, and his/her particular special needs.
If
they are not very familiar or experienced with Asperger's Syndrome, provide some
information and refer them to good resources and contacts.
They
will probably ask for a copy of any reports or referrals from specialists about
your son or daughter.
Letters
from specialists, especially with recommendations, are helpful to the school.
They provide the professional advice that is required, and also give credence to
your information as parents.
Don't
allow room for assumptions from a general diagnosis – they may not apply to
your child. Tell the school staff how your child's diagnosis specifically
effects him/her.
If
you do not have a set diagnosis, provide all the information you can from
professional sources and your own knowledge of your child.
The support staff may be helpful in making further referrals, if needed.
Over
time, develop cooperative and regular links with these staff. They may greatly
appreciate your support and assistance, as they have a difficult and demanding
job in the school. They are the advocates for students who are not always the
easiest in a class, and often have to deal with difficult situations. Not all
staff are prepared to make the adjustments needed for these students, and the
support staff can have an uphill job in gaining good outcomes for students and
teachers, and the whole class.
Work
out, with the support staff or team, how best you should communicate with the
school and the teachers:
·
Who should be the primary contact, and for what?
·
Who do you contact if there are problems in a
certain class?
·
Who do you contact about general coping issues?
·
Who do you contact about special considerations
with assessment?
·
Are there any teachers who really will be
unapproachable about these issues?
·
How do you contact different staff at the
school? (Do you go through the main
school phone number or are there different phone numbers for different sections
of the school?)
·
When is the best time to call staff?
Find out when each teacher and the support staff have spare lessons
during the week, so you do not feel that you have to interrupt them in the staff
room during their morning tea or lunch breaks. (Administration will have the
details of each teacher's classroom times). The timetables can change each
semester so you may need to this more than once in each year.
·
If you are dropping a note in to a staff member, what is the fastest way
to get it to him/her? (We cannot always rely on our teenagers to do this, and
sometimes the matter needs a guaranteed delivery or may not be appropriate to
leave in the student's hands).
·
Do teachers have access to email and do they read it regularly?
·
Are there any times in the week in which you can have regular contact
with the support staff?
·
What do the support staff (and teachers) want to be kept up to date
about?
·
Will teachers regularly look in a homework or communication book that
the student takes from class to class? This can be a helpful day to day method
of communicating about homework, and reminding the student and parents of
things. Parents, students and teachers should write in it, so that it is a
helpful and positive tool. As they get older though, students may need more
privacy and a sense of independence with such a book.
One
of the greatest difficulties at high school, for parents, is the number of
people who need to be informed about the student's particular needs, and any
developments along the way. There simply is not time to talk to them all
individually.
A
GENERAL LETTER is a very effective way of providing the same information to
everyone concerned. This can help
put your mind at ease, that, at least you have informed all staff of the basic
issues.
It
is usually helpful to provide such a letter at the beginning of each year, but
you may wish to update it in second semester, or if something dramatic occurs.
Make
copies of it and provide one to each person. Don't forget to also provide copies
for the Principal and other senior staff members, the sports teachers, the
outdoor education staff, the librarians and any other people who will take an
active role with your child. In the Senior years, the relevant Subject
Coordinators, whether your child's teachers or not, need to understand
everything, as they are key people in approving special consideration for
assessment.
Usually
give the letter first to the learning support staff, so that they can respond to
any queries from teachers. If you are working cooperatively with them, it can be
beneficial if the support teacher(s) gives the letters to the other staff. They
may wish to add extra information (e.g. about teaching strategies or assessment
implications). It also reinforces to everyone that the parents and support staff
are working together.
Set
out the letter so that it is easy to read. Use of paragraph headings and a
report style is a good way of making it readable. This also helps you organise
your thoughts when there is so much you could write.
Some
suggested paragraphs headings:
·
Introduction – why you are writing to staff;
·
Asperger's Syndrome – a brief description of
what it is (or attach a pamphlet);
·
How Asperger's Syndrome particularly effects
your child;
·
Professional support - briefly mention the sort of outside assistance your child
receives;
·
Medication – mention this if it is relevant to
school, concentration, behaviour etc
·
Interests and talents;
·
Relating to other people, and friendships;
·
Literal interpretation of spoken language;
·
Things that are (or might be) issues at school;
for example:
-
Noise
-
Change
-
Processing/sequencing problems
-
Slow handwriting
-
Attention Deficit
-
Learning problems
-
The way your child thinks and learns
-
Dealing with frustration or anxiety
-
Behaviour
-
Multiple Tasks and Hurrying
-
Excursions, Camps
-
Organisational difficulties
-
Whether your child is sensitive about being seen to have special
considerations and needing help.
·
Homework and assignments – indicate if there
are difficulties and how this happens at home and state that you will be in
regular contact about this;
·
Other relevant issues;
·
Suggestions for working with your child, for
example:
-
Need for help with all organisational matters
-
Ensuring homework is written down and understood
(not only in Gr 8)
-
Giving him/her all handouts personally
-
How to help
him/her stay on track
-
Special friends who might help
-
Preparation needed for excursions
-
Indicators of acute anxiety or frustration, and
what to do to prevent or manage these or difficult behaviour
-
Tips for handling your child's conversations or
responses in class when they are 'off on a tangent', or go on too long
-
Use of a laptop computer or cassette recorder
instead of writing
-
How to know whether the student is really
listening or not
·
Conclusion –
-
Thank the reader for taking the time to read
this
-
Mention if you have regular contact with the
support staff
-
Invite staff to contact you about any concerns
or questions
-
Include contact phone numbers for day and
evening.
NB.
When writing such a letter, be mindful of the privacy of your child and your
family. This is not always easy when trying to give full, useful information,
and there is a lot to tell. However,
consider your child's dignity and privacy, with the content that you write down.
Some things, if important, might be better said to staff you can trust to be
discreet with the information, and to pass on professionally.
Also,
in some cases, it might be better to give a general statement in the letter
rather than be too specific, again to maintain the dignity of your child. E.g.
that you and the specialists have reason to be concerned for the student's
emotional wellbeing at present - rather than writing the exact detail of this.
The
assistance and support of the specialists who work with your child is
invaluable.
Teachers
will often relate to their advice, more easily than to that of the parents - at
least initially.
Some
specialists may come to the school to talk to staff, which is really useful,
especially if parents also attend and usually also the student. It is good to
tape such a meeting (with participants' permission) so that other teachers can
listen later, or a transcript can be made. (The parent should expect to pay for
the specialist's time, unless the school engages him/her to assist with
professional development).
Support
letters from specialists regarding behaviour management and the need for special
consideration with assessment tasks and in exams, is also invaluable. This makes
it easier for the teaching staff, having a professional recommendation; and
takes some pressure off parents who can feel embarrassed at constantly asking
for considerations of one sort or another. The specialist may write a letter of general recommendation
each year, or semester, which the school should accept. Naturally they cannot do
this every time there is a test or assignment.
Ask
your specialist to make specific recommendations and the reasons for these, as
well as give general advice about your child. Examples of this re assessment
are: use of laptop computer in tests requiring answers of a paragraph or more
due to handwriting fatigue and processing problems, or extra time in tests due
to concentration and processing difficulties, or doing tests in a separate quiet
area, due to attention deficit. Recommendations about behaviour management help
teachers' confidence in working with students who may display odd or challenging
behaviour. By giving teachers assistance with a range of
strategies, punitive or other inappropriate measures might be avoided.
This
is something that parents of all students must do if they are to support their
children in high school, but again, is essential for parents of students with
special needs. The only way to work with the system, ensuring that there is no
disadvantage to your child, is to know it very well!
You
will often have to be aware of what is coming up, and not be waiting to hear
about it.
Schools
run information sessions about this. Go to them all if you can. They are
typically about choosing subjects at each stage, how different year levels work,
vocational guidance, the assessment systems of each level and even on how to
help students with these.
In
the Senior years, there is a lot for students and parents to learn. There are
the requirements for a Senior Certificate, and for an OP (Overall Position used
for entrance into tertiary courses), the Queensland Core Skills Test, the
linkages to TAFE courses in the school system and mapping out pathways towards
post school training, employment or tertiary courses.
There
is also the moderation process used to check comparable students' work from
different schools. When and how this happens is important to know if your child
has extensions on work, and if his/her work is needed to be taken to a
moderation meeting.
Education
Queensland can provide further information and booklets, if the school does not
have all you need.
Once
again, information sessions are a great help, and are vital to attend.
It
is important to know, ahead of time, how the term or semester is planned, so you
can anticipate if there will be any adjustments required for your son/daughter.
Many high schools now release a semester or year school calendar, which has all
of the major events, camp times, excursions, and Senior block exam times etc
marked on. If students do not receive this, all teachers would have something
like this and the learning support or administration staff may understand why it
is useful for you to have a copy.
Many
schools, especially for Senior years, also give students an Assessment Guide
which details all of the work that will be required for the semester in each
subject and the due dates and exam sessions.
Once again, if this does not happen at your school, ask for assistance in
gaining this information, explaining why you need such an overview and to be
able to plan ahead. For example, starting a project early may help allow enough
time to avoid the student having to manage 2 assignments at the one time. Or,
having seen that 3 subjects will have work due in one week, you may be able to
help your child negotiate some changes before it all becomes unmanageable.
However,
nothing is ever simple, and all good planning can be changed! Teachers will
quite often change from a written plan, so it is important to be talking to your
child, and if necessary the subject teacher or the support staff to know what is
actually happening or expected.
MONITOR
HOMEWORK AND ASSIGNMENT REQUIREMENTS.
It
may not be enough to ask teachers to (please!) make sure your son/daughter knows
what is required each night/week etc. Teachers have many classes and are busy
and forget. They also may think your child has heard/understood when they really
have not. And then there are also often the teenagers who do not want to know!
Whatever
the reason, it is good to generally be aware and help your child keep up as best
he/she can.
It
is very helpful to know the names and phone numbers of an understanding friend
or classmate from each subject class. At 8pm, when your child cannot remember
what the English teacher said to write a paragraph about, or which Maths
examples to do, a quick phone call can solve the problem easily, avoiding
anxiety or the student falling behind. If your child does not know names and
where people live, once again staff at school should be able to help make these
links, if you explain your reasons.
The
amount of homework that your child can do may be quite different to what is set,
and may vary according to the subject, or the state of your child's tiredness,
stress levels or learning/processing difficulties.
Often
students with learning or processing problems are overwhelmed by a seemingly
large task, but can manage it if it is broken into small parts. A page of maths
or science questions could easily cause the student to give up, but if you cover
all except the first it seems OK. Proceed by completing one part, and move to
the next.
Other
tasks may involve too much for your son/daughter. Help him/her decide (or you
decide) how much will cover the work even if not in the depth that was set. For
example: in Graphics, draw 4 designs rather than 8; or complete only parts (a)
and (b) of the 6 Maths questions, and not (c), (d), and (e) of each; or write
one paragraph rather than two. Remember
that some ASD students grasp a concept quickly and do not need lots of
repetition to learn. This can actually infuriate them and be counter productive.
There
are occasionally other tasks that you will know are not worth the stress and
distress. Perhaps something else can be done in its place so that the student
learns that there are alternate ways to tackle things, e.g. rather than colour
and label a map, find information on the internet about one of the landmarks
that was to be labeled. Otherwise, help your child take responsibility and
understand why this task can be left undone.
In
all or any of these cases support your son/daughter by writing a note to the
teacher in the homework book, or by attaching it to the piece of work. Explain
that you are aware of the homework achieved and why it was hard to do more, or
why it has not been done. If your
child has tried hard or worked for a long time, regardless of the amount there
is to show for it, communicate this too. Often there is little to see for the
hard work and time spent at the task. These students will be more willing to try
if they know their efforts are recognised and if they know that they will not be
in trouble for incomplete work.
Some
schools run homework assistance programs involving extra time at school, or more
punitive homework detentions, as ways of assisting students to keep up with
their work. These may not be appropriate for your child even if homework is
incomplete. Again this is another reason for all staff to understand your child,
and for parents to be proactive in the prevention of the difficulties such
things could cause.
Work with the learning support staff and teachers to understand the best ways for your child to learn and to demonstrate this. Assignment writing might present mental blocks and anxiety, whilst speaking into a cassette recorder, or answering questions on tape may not present problems. The spoken tape might be accepted in some cases for part or all of an assignment.
Sometimes
a task might be impossible for your child due to the way he/she thinks or can
cope. The usual processes of doing research or doing the task may also not be
possible for your child, due to his/her processing and sequencing difficulties,
the need to go to strange places, libraries being threatening places due to the
degree of choice involved, etc. Working in certain groups may be difficult or
linking with others to do group projects may need extra assistance.
Tasks
and processes may need to be modified so they are possible for your child and
also demonstrate the skills and knowledge required by the assessment system.
Learning
support staff are skilled in this area. However, unless they are closely
involved with your child's work and classes or if they do not know him/her well,
they may not understand what is required. This is where parents and learning
support staff and/or subject teachers can work together to help the student, so
the expectations and processes are realistic, learning and self esteem are
achieved for the child and the outcome also meets any assessment requirements.
BE
OPEN ABOUT THE HELP YOU GIVE.
Don't
be shy about helping your child in ways that are not usual at high school.
For
example, if he/she cannot get started when writing something you may need to
help compose the initial sentences or paragraph. You may even have your child
speak his/her ideas while you write them down, and then help him/her make
adjustments to make it as more like the student's writing style. You may have to
go to the library to get books etc, help with the organisation of information
for an assignment, or work one to one with your child in making a handmade
article of some sort. Keep a strong focus on facilitating or enabling your child
to produce or get started in his/her work, and know where that differs from
'doing it for him/her'.
Tell
the staff everything you do in helping. This overcomes the concern of helping
too much, or even of 'cheating'. Teachers will appreciate this, as they can
assess that assistance has been given. It builds trust and develops a sense of
partnership in helping your child. Teachers will also better understand both
your child's difficulties and abilities through this process, and be able to
more accurately assess his/her work.
USE
TECHNOLOGY TO HELP WITH ORGANISATION
There
are many electronic devices that can be really useful for ASD students,
depending on their learning styles. Use a dictaphone or cassette recorder rather
than trying to write notes, or in place of some writing. Word processing on a
computer may be easier than longhand writing if this is a problem, and really
assists with organisation of ideas. The internet is a wonderful means of
researching without leaving school, home or one's computer, so long as the
student has assistance in locating useful information and avoiding being swamped
by too much.
There
are some great computer software packages, such as 'Mind Map', which help
organise ideas and produce these into lists or reports. This is often a great
way to get started on a task. Computer graphics software can make possible tasks
that may be otherwise impossible for your student. Our technological 'whizkids'
usually identify readily with computers and their use can help overcome other
difficulties. Find out what the school has, and encourage them to acquire
appropriate software. If possible have some at home too.
By high school, parents will have worked out individual ways to help their child with personal organisation. A very useful item for these teenagers is a watch which has both a memory bank (for recording people's names and phone numbers and other important data) and alarms. Unfortunately most watches with memory banks have only one alarm, but Casio currently has one with five alarms. The alarms are exceptionally helpful for time management and reminding the student of things to do or remember, both at school and at home.
PHYSICAL
EDUCATION, OUTDOOR EDUCATION, EXCURSIONS, CAMPS.